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Monique Zimmerman-Stein has been nearly blind for the last two years from Stickler syndrome, a rare genetic disorder. She recently decided to forego her own treatment to save funds to treat her two daughters, who also suffer from the condition, reports Lane DeGregory of the St. Petersburg Times.
The family is covered under husband Gary's Blue Cross/Blue Shield plan, but that coverage only pays for 80 percent of medical expenses.
She will no longer get treatment to preserve that last slice of light. The injections that might help cost $380 after insurance, and she needs one every six weeks. She could be spending that money on her daughters' care.
If forgoing treatment might help them see, she said, "That's a choice any mom would make."No one should have to make such sacrifices, said her husband. He hopes the new health plan will include a public option and won't exclude people with pre-existing conditions -- like his wife and daughters.
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